"I am 1 in 4500! I was born with a syndrome called Mayer Rokitansky Kuster Hauser Syndrome (MRKH for short). I was born without a uterus and missing the upper 2/3 of my vagina. I have only one ovary. My kidneys and spine are also affected. Both my kidneys are on my right side, and I have scoliosis in my back. There is no known cause for MRKH. It affects roughly 1 in 4500 girls born. It is usually detected around age 12-16, when a young girl has not started her period and they begin to wonder "Why?"
I was diagnosed with MRKH on December 7, 2010. It was a heartbreaking, life-changing day. I still struggle emotionally at times regarding starting a family, and even just making basic plans for the future. I know someday things will work out for us and we will have a family of our own, and while I am content with the way things are in the present, sometimes the baby showers, lovely round bellies and adorable baby photos make me burst into tears!
I am so thankful I have been able to meet many of my MRKH sisters through social media. My biggest thank-you's go out to Kristen Peterson and Lise Gimre. You are the first two sisters I ever contacted and I am so grateful we keep in touch! I never in a million years I thought I would find anyone who is "like me" but a quick search on Twitter and Google quickly proved otherwise! You are both an inspiration, as are all my other sisters around the world!
I am also very thankful for my supportive and understanding family and friends, who have been there for me since day one. From the beginning trying to push the doctor to start testing, to being diagnosed, to my struggles and all the way up to present day!
And of course I am thankful to have met a man who loves me just the way I am! He has known about MRKH pretty much since we met, and could not be more supportive and loving! He understands that sometimes I get upset, and is my rock in every way! He has seen me break, watched me struggle, and ultimately helped me triumph!
I couldn't ask for a better group of people to surround myself with during both the good and bad times. In honor of National Infertility Awareness Week, thank you! #NIAW2016 #NIAW #MRKH #Sisters"