Mayer-Rockitansky-Kuster-Hauser syndrome mainly affects the reproductive organs. For example, I was born without a uterus or cervix, missing the upper 1/3 of my vagina, and only have one ovary (because the other one is in a very weird spot - more on that later!) MRKH affects 1 in every 5000 women (or, depending on the source, 1 in 4500 or 1 in 10,000.) It turns out that MRKH can be a genetic syndrome, but just because you have it does not mean any of your ancestors had the full syndrome, they may have just shown parts of it.
MRKH symtoms also include kidney problems from development in the womb, spinal malformations, and occasionally even hearing problems. Personally, I have ectopic kidneys (so they are both attached on my right side) and I have scoliosis (a twisted spine.) And yes, that "missing" ovary of mine is up on my left side where my left kidney should be.
A "Normal" Female Reproductive System:
My MRKH Reproductive System:
Here is the link for our fundraising page if you would like to share and make a donation to help us start a family.
http://www.indiegogo.com/projects/ivf-support-fund-for-our-infertility/x/5426178